Scientific Programme

9:00 am – 9:20 am

Introduction: From Vision to Action — Building the Partnerships, Workforce, Systems and Evidence Required to Eliminate Severe Hemoglobin Disorders

20 min

9:20 am – 10:30 am

Session I: Preventing Tomorrow’s Suffering

55 min + 15 min buffer

1. Empowering Families as Partners in Prevention: Informed Choices for a Hemoglobinopathies-Free Future

   Dr P G Natrajan Fetal Medicine Specialist and Obstetrician/Gynaecologist Nanavati Max Super Speciality Hospital, Mumbai, India
   10 min
2. From Policy to Prevention: Scaling Targeted Antenatal Screening in Some of India’s Most Challenging Geographies

   Dr Ruby Khan Deputy Director, Blood Cell National Health Mission (NHM), Madhya Pradesh, India
   15 min
3. Making Informed Choice Possible: Can Invasive Prenatal Diagnosis Be Delivered at Scale in Resource-Constrained Settings

   Dr Alka Patankar Professor and Head, Department of Obstetrics & Gynaecology Indira Gandhi Government Medical College & Hospital, Nagpur
   15 min
4. India 2047: What Will It Take to Eliminate Severe Hemoglobin Disorders?

   Mr Rajat Kumar Agarwal President Sankalp India Foundation
   15 min

10:30 am – 12:10 pm

Session II: Delivering Better Care Today

65 min + 15 min buffer

1. Living with Hemoglobin Disorders: The Family Perspective on Better Care and Better Outcomes

   Mr Waghmare Parent of a Child with Thalassemia
   10 min
2. The Future is Local: Building High-Quality Hemoglobinopathies Care Beyond Metropolitan Centres

   Dr Dasaratha Ramaiah Paediatrician, Neonatologist & Neurologist, HOD of Paediatrics RDT Hospital, Andhra Pradesh
   15 min
3. Value in Blood Services: Are We Investing in the Right Things?

   Dr Suman Jain Chief Medical Research Officer & Secretary Thalassaemia and Sickle Cell Society (TSCS), Hyderabad, India
   15 min
4. 11:20 am – 11:40 am Tea Break
5. Innovative Models Delivering Disproportionate Value: Lessons from Blood Services, Public Health and Community Programs

   Mr Y D Rama Rao Chairman India Red Cross Society, Andhra Pradesh state branch
   15 min
6. The Digital Future of Hematology: Turning Data into Better Clinical Decisions

   Dr Deepa Trivedi Program Director, Paediatric Haematology, Oncology & Bone Marrow Transplantation Sankalp–Health1 Centre for Bone Marrow Transplantation, Ahmedabad, India
   15 min

12:10 pm – 1:00 pm

Session III: Expanding Access to Cure (Part I)

40 min + 10 min buffer

1. From Hope to Cure: The Family Voice in Expanding Access to Curative Therapies

   Speaker to be announced
   10 min
2. From Blood Dependence to Cure: Building Cost-Effective Transplant Programs in Low- and Middle-Income Countries

   Dr Lawrence Faulkner Medical Director, Cure2Children Foundation (Italy) & Sankalp India Foundation (India); Consultant, DKMS Group Cure2Children Foundation, Italy
   15 min
3. Thalassemia Bal Seva Yojana

   Mrs Shobha Tuli Secretary Thalassemics India, New Delhi, India
   15 min
4. Access to Transplant – DKMS Perspective

   Dr Isabel Auer Program Director, Access to Transplantation (ATT) DKMS Tübingen, Germany
   15 min

1:00 pm – 2:00 pm

Lunch Break

2:10 pm – 3:05 pm

Session III: Expanding Access to Cure (Part II)

45 min + 10 min buffer

1. Beyond Matched Siblings: The New Era of Alternative Donor Transplantation

   Dr Revathi Raj Program Director, Paediatric Haematology, Oncology & Blood and Marrow Transplantation Apollo Cancer Centre, Chennai, India
   15 min
2. Role of Clinical Trials in the Developing World

   Dr Johannes Schetelig Global Chief Scientific & Medical Officer and Director Clinical Research, DKMS; Head, Stem Cell Transplantation Unit University Hospital Carl Gustav Carus, Dresden, Germany
   15 min
3. Sickle Cell Disease - Role of BMT

   Dr D M Mohana Reddy Program Director, Sankalp India Foundation BMJH; Pediatric Hemato-Oncologist & Bone Marrow Transplant (BMT) Physician Sankalp India Foundation BMJH, Bengaluru, India
   15 min

3:05 pm – 4:10 pm

Session IV: Building Systems That Last

55 min + 10 min buffer

1. Patient Centricity Through Simplicity

   Mr R N Prasad Board Member, Sankalp India Foundation; Chief Executive Officer Confluence Consulting Circle
   10 min
2. From Individual Excellence to System Excellence: Building High-Reliability Programs Through Quality, Accreditation and Continuous Learning

   Dr Lynn Manson JACIE Inspector, JACIE Accreditation Committee Joint Accreditation Committee ISCT-Europe & EBMT (JACIE), United Kingdom
   15 min
3. Building the Workforce Required for Elimination: Experiential Learning, Mentorship and Global Collaboration

   Ms Uficca Hoojon Nursing Head, Pediatric Hemato-Oncology & Bone Marrow Transplantation (BMT) unit Sankalp India Foundation BMJH, Bengaluru, India

   Mr Sunil Dhimal Senior Software Developer Jagriti InnoHealth Platforms Pvt. Ltd., Bengaluru, India
   15 min

4:10 pm – 4:30 pm

Closing Keynote

20 min